Rheumatoid Arthritis May Not Kill You, But It Can Take Your Life!
Marie (no, not Donny’s sister) is passionate about her MAD program, and has recently sent us an update on M.A.D Brits for NRAS (National Rheumatoid Arthritis Society). Read on for more information, and stop by Donny.com on a regular basis to get updates on all the 2011/2012 MAD participants. It has certainly dominated my life for many, many years since being diagnosed in 1994 so when you gave me the inspiration and opportunity to Make A Difference, I was so thrilled to be able to give back and support a charity which helped me through some of my darkest days. Along with 8 others who also offered to support this cause, we became M.A.D Brits for NRAS!
M.A.D Brits for NRAS (National Rheumatoid Arthritis Society) is raising awareness and funding for adults who suffer from Rheumatoid Arthritis (RA) and children who suffer from Juvenile Idiopathic Arthritis (JIA). We are focusing on the National Rheumatoid Arthritis Society here in the U.K for our fundraising whilst also raising awareness of this painful, chronic, debilitating, currently incurable disease on both sides of the Atlantic. It is an auto-immune disease, affecting nearly 700,000 people including about 12,000 children in the UK and over 1.3 million people in the U.S. , occurring because the immune system attacks the body for no reason, instead of protecting it, leading to severe joint pain, disability , fatigue and the inability to carry out everyday tasks.
The good news is that the prognosis today, if diagnosed and treated early, is significantly better than it was 20-30 years ago and many people have a much better quality of life in spite of having RA.
M.A.D for NRAS has already made headway:
- On my return from Las Vegas, I was invited by NRAS to speak on my local radio station, BBC Radio WM with Ed Doolan,(D.J) and a Consultant Rheumatologist to discuss my own experience of living with RA and to support a Public Awareness Campaign launched jointly by NRAS and Arthritis Research UK, emphasising the importance of early diagnosis in RA and the positive effects on patient health and outcome. This show airs to thousands of people in the West Midlands so what a great way of kick starting our M.A.D programme!
- I have applied to join the Telephone Support Volunteer network for NRAS offering sufferers practical and emotional support
- I have displayed posters and information leaflets regarding RA and NRAS in Doctors surgeries and pharmacies and will continue to do so
- Lucy, 12, organised a Guess the name of the Puppy, and raised over ┬ú50 ($75) for NRAS, more puppy antics to follow!
- Donny.Commers have , as always, been incredibly generous and kind and have donated goods to sell and money directly or via our JUSTGIVING site; www.justgiving.com/teams/madbritsfornras
- My wonderful husband organised a golf event in Wales with 11 of our friends and raised an impressive ┬ú200 ($315)!
- We are recycling inkjet cartridges, mobile phones and unwanted jewellery for NRAS
- Ordered wristbands to sell
- Sent letters to local businesses seeking support
- We have a sponsored walk, tea parties, raffles , merchandise to sell and many other events planned – watch this space!!